Wednesday, October 19, 2011

New treatments yah or nay?

This journey we are on is evolving like most people's lives. We are always thinking about something new that can really make the difference.  This is insurmountable task!  Its a constant stress in my life even when things are going well.  We know especially with Epilepsy that medicine stops working and then we are in a mess.  So for the last 13 years I ALWAYS have a backup plan.  This really irritates my doctors at times but they have come to accept that this works for us but keeps meghan safer so they comply. About 1 month ago a friend of mine stumbled upon something new that she decided to try.  She is getting great results so now I am considering it!  This is the hard thing about making decisions.  What may work for 1 child it may or may not for another.  Meghan is a late responder to most treatments that we have done.  When I started learning about this new method I was really unsure.  We decided to get her evaluated and see what he would offer.   I've decided that I have followed neurologists, Gi doctors, orthopedic doctors, therapists, teachers, parents and all of them have ideas none have solved the core of why meghan is still regressing!  Why is it that we put so  much weight on those team members but we are convinced not to go with methods that are  not as accepted.  Do we really have that more information to show better results? I know that doctors need data, they need evidence based studies and they need more than antedoctal experiences.  My gut is telling me to try it and see what results I get.  We have spent 1000's of dollars on treatments, methods that show no results so we think just doing the conventional treatments are good enough?  But the time is just ticking by.  Why should we be afraid to try other methods that may prove to open another door ?  Maybe or may not figure out what is wrong so we'll know how to fix it!
I'm not suggesting for you to try this method but I am suggesting that you keep an open mind to new methods and if they may open a door to your child's health to consider it.  Talk to all your health professionals and get their advice.  Then make your decision.  Sometimes this takes me weeks other times its instantaneous either way its heavy on my heart.
Personally I think medicine is just a bandaid. For my child, its needed everyday but how do we heal the core of the issue?  That's what this method is trying to do. And there are many other methods that do the same like homeopathy, natural medicine, etc.
So for me this method is a yah and we'll see what the results will be.  Stay tuned!

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